Across Australia, there are many small organisations dedicated to supporting people living with Lupus. We believe an umbrella group can achieve even more by joining forces, and working together to raise awareness, improve access to support, and change outcomes for everyone affected by Lupus.

By uniting Lupus groups across the country to create a shared platform, we allow people living with Lupus the chance to connect, access, and share reliable and updated information within the Australian community.

A strong, united voice for Lupus warriors starts here.

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Lupus Series: Why is Collective Advocacy  so important?

Ann Single (CEO, Patient Voice Initiative) talks to us about the importance of Collective Advocacy at what it means for people with Lupus.
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MyFlareUp launches new pain communication tool (MPaCT) at Parliament House

MyFlareUp was honoured to launch My Pain Assessment Communication Tool (MPaCT) in partnership with Painaustralia at the Parliamentary Friends of Pain Management event on 10 March 2026 at Parliament House in Canberra, Australia. This event brought together patient leaders, clinicians, advocates and policymakers to discuss the future of pain communication in Australia – and the urgent need for reform.

Parliamentary Friends of Lupus

As part of this project, we are proud to have helped establish the Parliamentary Friends of Lupus in the Australian Parliament. This is a significant step forward in raising national awareness and building political support for the Lupus community.

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Want to collaborate?

We are always looking for new ways to support, inform, and uplift our Autoimmune Community.
Our projects reflect what we’ve heard from listening to our community and hearing what’s missing, what’s needed, and what could truly make a difference.

Our projects are at various stages of planning or market entry development, and most of our projects are undertaken in collaboration with like-minded groups who share our goal of improving the lives of people living with inflammatory and autoimmune conditions.

Some of our projects are not live yet and we’re always actively seeking support, partnerships, and resources to bring them to life. With the right support, we are sure we can transform these ideas into reality. If you’d like to collab with us or just get more information, please reach out. We always love to hear from you!