Melinda Barrett shares her deeply personal story of living with Lupus. From health challenges that began at a young age to the many connected autoimmune conditions she has been diagnosed with, Melinda speaks with honesty, humour, and wisdom about what it means to live with Lupus.
She describes herself as the ‘luckiest unlucky person’ she knows, and acknowledges both the difficulties and sources of gratitude in her life, which she candidly refers to as a beautifully messy human chaotic story.
Melinda’s story is a testament to her strength and resilience, summed up in her powerful words: ‘We don’t fight lupus, we negotiate it’.
Julie shares her personal story of resilience, struggle and perseverance with Lupus. She has Systemic Lupus, Cutaneous Lupus and CNS Lupus. Julie was one of the first patients in Australia to receive the new Lupus treatment at the time, Anifrolumab. She talks about her journey on the treatment and shares her optimism with the results, and hope for people battling autoimmune conditions.