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In this session we learn about the joint research project by Dragon Claw (now MyFlareUp) and Community and Patient Preference Research (CaPPRe).
Dragon Claw’s Dr Charmaine Jones explains that she noticed many people with inflammatory autoimmune conditions in our autoimmune community seemed to not have their disease optimally controlled. The goal of the research was to understand patient’s treatment experiences and preferences in order to see what things encourage or discourage patients from starting new treatments.
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Daileen Cortex Caudillo opens her story with courage and heart, helping us understand what living with Still’s Disease really looks like, beyond the medical words.
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