We are a charity of people with lived-experience of autoimmunity.
I’m Ben
I’m living with Lupus
I’m Tyrone
I have Psoriasis
I’m Jono
I live with Crohn's
I’m Hannah
I’m living with Hashimoto's
I’m Stella
I have Multiple Sclerosis
I’m Maureen
I have Rheumatoid Arthritis
I’m Hannah
I’m living with Hashimoto's
A community for Rheumatoid Arthritis
A place for carers providing support for Autoimmune Conditions
Support for living with Lupus
Self-care tips around sleep Inflammatory Conditions
Tools to track symptoms Autoimmune Conditions
A community for Rheumatoid Arthritis
A place for carers providing support for Autoimmune Conditions
Support for living with Lupus
Self-care tips around sleep Inflammatory Conditions
Tools to track symptoms Autoimmune Conditions
What is My Flare Up?
Hi, I’m Stuart!
I have Scleroderma of the lungs and Raynaud’s.
Read more
Hi, I’m Kathryn!
I have Rheumatoid Arthritis, Polymyalgia Rheumatica and Autoimmune Hepatitis.
Hi, I’m Erin!
I live with Multiple Sclerosis
Hi, I’m Cheryl!
I live with Rheumatoid Arthritis.
Read more
Hi, I’m Alasdair!
Carer for my wife who has Multiple Sclerosis.
Read more
Hi, I’m Jill!
I’ve lived with Rheumatoid Arthritis for close to 25 years.
Read more
Hi, I’m Vu!
I have Lupus
Read more
Weekly Dragon Talks
Sign up for regular invites and to stay informed of the topic and guest speaker for the session. As part of these talks, we have a monthly session on Lupus, called Lupus Series. Visit our Dragon Talks page to learn more.
Australia
Dragon Talks 1 (Australia)
Facilitator
Fay Baudains
The Monday session is primarily for our Australian members who are unable to attend during the working day.
These sessions are held on the first and third Monday of each month at 7 pm AEST/AEDT.
North America
Dragon Talks 2 (International)
Facilitator
Dr Charmaine Jones
This session is for those who can attend in the morning and runs every Wednesday at 10 am AEST/AEDT (Tue 7 pm ET).
Our online Dragon Talks sessions provide compassionate support as you navigate your autoimmune journey.
Being part of a community of people with similar experiences who can empathise, can be invaluable in keeping your spirits up and your mental health in check.
Sign up to attend a Dragon Talk
Your journey isn’t just a medical one – it’s personal. Join our community of people with shared lived experience, so you don’t have to do this alone.
Resources
Here is a sample of some of our resources. To explore past Dragon Talk sessions or webinars, read an article, a members story, or to listen to an expert talk, go to our Resource Library and browse the titles.
Lupus Series: Amanda’s Story and Kidney Health
We talk about kidney health and the impact on Lupus. Amanda shares her personal Lupus story and then we hear from Stephen Cornish from Lupus Health Australia, who talks about the importance of support on your journey.
Mindful Movement – Part 4 – Light Resistance Training
In this class in her Mindfulness in Movement series, Yoga Therapist & Mindfulness Instructor, Jill Dunkley, explains how to use light weights to help your muscles become stronger, to be able to put more load on your bones in a way that also promotes bone health. She talks about light resistance training for upper and lower body.
Autoimmune Conditions and the importance to Know Your Numbers
Dragon Claw’s own Dr Charmaine Jones was the driving force behind the need for a tool for people living with autoimmune conditions – a tool to their own symptoms and test results to empower them to be a more active participant in their treatment plan. Being able to show your medical practitioner a picture over time, to be able to better advocate for themselves. In this episode, rheumatologist Dr Daniel Lewis talks to us about the benefits of using a tool like this to help identify if medication is working for you, or if you need an adjustment.
Sign up to our newsletter
To be notified of our News, Events or Collaborations, sign up here. Be the first to know of updates in the Autoimmune Community and learn what My Flare Up has to offer!
