Tools

We know that living with an autoimmune condition is often complex, unpredictable, and exhausting.

Many of us are managing our symptoms while maintaining work and home commitments, often squeezing in time for medical appointments. We’re juggling parenting with getting enough sleep, eating well, staying on top of housework, shopping for groceries, and maintaining relationships – while tracking our symptoms, flare triggers, and how our bodies respond to treatment.

By the time we finally make it to a doctor’s appointment – where we need to convey this information accurately and efficiently, usually in a short space of time – we can feel like we’ve let ourselves down. Too many of us leave thinking, ‘I forgot to mention that,’ or ‘I didn’t explain it properly.’ This is especially common if we’re exhausted or feeling unwell, as it can affect how we process information, and communicate. We know how important it is for your doctor to listen and respond to our feedback so we get value from each appointment, and our treatment reflects your true experience. We feel your frustration and you’re not alone, and that’s why we’ve created these tools. Our tools are practical and easy to use, to encourage easier communication with your doctor.

Use our tools to track your symptoms, test results, pain levels, and day-to-day impacts, so you can arrive at appointments feeling more prepared and confident.

They are designed to support meaningful collaboration with your doctor and are not medical advice, but simply a way for you to take a more informed approach when talking about the your treatment plan. Most importantly, these tools are shaped by you. They’ve been developed by listening to our community in our Dragon Talks sessions, learning from shared experiences, and partnering with other organisations where needed. Your voices, challenges, and ideas guide what we create. As our community grows, so will our resources – always grounded in real needs, real lives, and real support. We hope you find these tools helpful on your journey, and we always welcome any feedback.