At MyFlareUp, we’re dedicated to improving lives through innovative, community-focused health initiatives. Our projects range from culturally grounded education to support services tailored for those navigating complex health journeys. Each project is designed to make a meaningful difference. We’re able to do this important work thanks to the generous support of our partners in the pharmaceutical industry, the Australian Federal Government, and individuals who believe in our vision.
Together, we’re creating a stronger, more informed, and more connected community where no one should face their diagnosis and condition alone.
Chronic pain is now understood as a condition in its own right. It is not simply pain that lasts a long time, nor is it always a sign of injury or ongoing damage. In other words, the nervous system itself changes. This is very different from acute pain, which serves as a warning signal and usually resolves as tissues heal.
This project aims to highlight the unique challenges faced by Aboriginal and Torres Strait Islander communities through storytelling based on lived-experiences reflecting the preventable suffering and systemic inequality of condition diagnosis and disease management. This video series illustrates the unique challenges these communities face, which we believe should be highlighted in order to effectively advocate for real change.
We discovered a concerning trend within our autoimmune community in that many of you continued having severe symptoms despite there being new treatment available. This led us into a research project to explore why.
Following the great success of our Dragon Talks series, we kicked off Lupus Talks, a monthly online Zoom session to support and share information to people living with Lupus. Originally developed as a 12-month program, it has now been extended for a further 12 months due its popularity.
Building on our experience working alongside Aboriginal and Torres Strait Islander communities over the past five years to create meaningful videos that share important health messages in ways that truly resonate with the local mob, we are now focused on addressing the recent rise in lupus cases in the Kimberley.
Across Australia, there are many small organisations dedicated to supporting people living with lupus. My Flare Up believes we can achieve even more by working together. Through Uniting Lupus Across Australia, we hope to bring these groups together on one shared platform — a place to connect, share reliable information and updates, and speak with a stronger, united voice. By joining forces, we aim to raise awareness, improve access to support, and help change outcomes for everyone affected by lupus.
We are always looking for new ways to support, inform, and uplift our Autoimmune Community.
Our projects reflect what we’ve heard from listening to our community and hearing what’s missing, what’s needed, and what could truly make a difference.
Our projects are at various stages of planning or market entry development, and most of our projects are undertaken in collaboration with like-minded groups who share our goal of improving the lives of people living with inflammatory and autoimmune conditions.
Some of our projects are not live yet and we’re always actively seeking support, partnerships, and resources to bring them to life. With the right support, we are sure we can transform these ideas into reality. If you’d like to collab with us or just get more information, please reach out. We always love to hear from you!
