Following the great success of our Dragon Talks series, we kicked off Lupus Talks, a monthly online Zoom session to support and share information to people living with Lupus. Originally developed as a 12-month program, it has now been extended for a further 12 months due its popularity.
Our monthly sessions feature expert guest presenters like:
Some speakers we’ve had:
The open forum gives participants the opportunity to ask questions, share their own experiences and learn from others who truly understand the challenges of living with lupus.
How can Lupus affect different parts of the body?
What are treatment options available?
What are the complexities of getting new treatments approved on PBS?
What is the role of patient advocacy groups?
Personal stories from those navigating this condition every day.
As part of this project, we are proud to have helped establish the Parliamentary Friends of Lupus in the Australian Parliament. This is a significant step forward in raising national awareness and building political support for the Lupus community.
While information is the foundation of understanding your condition and staying on top of available treatment options, it doesn’t end there.
Your journey isn’t just a medical one – it’s personal. Getting compassionate support while you navigate this journey is important, so being part of a community of people who understand and empathise can be invaluable in keeping your spirits up and your mental health in check.
We are a community of people with shared lived experience. You don’t have to do this alone.
